Consent to participate in research by adults with intellectual disabilities – a systematic review of the literature and exploring the experiences of independent advocates AND Parents with intellectual disabilities following their involvement in child protection proceedings

Atkin, Charlotte Jane (2017). Consent to participate in research by adults with intellectual disabilities – a systematic review of the literature and exploring the experiences of independent advocates AND Parents with intellectual disabilities following their involvement in child protection proceedings. University of Birmingham. Clin.Psy.D.

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Abstract

Volume I presents research. Chapter one is a systematic review of studies investigating the ability of adults with intellectual disabilities (ID) to consent to participate in research. The review highlights the inconsistency and variation in findings in relation to consent ability, methods of providing research information and assessing ability to consent. A functional approach to consent is advocated, along with consideration of the relative benefits and risks of the research. Chapter two is an empirical paper examining the lived experiences of independent advocates and parents with ID in the context of child protection proceedings. The findings highlight the challenges advocates face and the key skills and qualities which underpin their work. Chapter three is a public dissemination document.

Type of Work:

Thesis (Doctorates > Clin.Psy.D.)

Award Type:

Doctorates > Clin.Psy.D.

Supervisor(s):