Children, young people and coeliac disease

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http://eprints.org/relation/isVolatileVersionOf http://etheses.bham.ac.uk/id/document/2349 http://eprints.org/relation/ispreviewThumbnailVersionOf http://etheses.bham.ac.uk/id/document/2349 http://eprints.org/relation/isVersionOf http://etheses.bham.ac.uk/id/document/2349 archive 4031 disk0/00/00/09/49 2010-09-22 15:40:00 2022-01-27 14:06:43 2011-07-19 16:26:30 thesis show 0 Theodosi Eleni Howard Ruth Law Gary U. University of Birmingham Children, young people and coeliac disease unpub BF RA0421 10col_life Psychological, psychosocial, adherence, quality of life This volume comprises a review of the literature about children and young people with Coeliac Disease, a common autoimmune disease characterised by an immune response to the protein gluten, found in wheat, barley and rye. It also comprises a qualitative research paper detailing interviews with young people that aimed to tap their lived experiences of the disease. The final part this volume comprise a public domain briefing paper summarising both the literature review and research paper. The literature review considers the evidence for problems with adherence to treatment (a lifelong diet free from gluten) for young people with Coeliac Disease as well as psychological effects of having the disease in childhood. Studies of parental views were also included. The results suggested that there is some element of psychological distress associated with having CD in childhood, and that adherence to the treatment appears to be influenced by age and gender. Studies of parents’ views about their child’s Coeliac Disease suggested that parents’ belief in their ability to manage the disease is important to how young children adhere to treatment. The research project describes how 5 children and young people were recruited and interviewed about their experiences of living with Coeliac Disease. The resulting data were analysed using Interpretative Phenomenological Analysis and two themes were subsequently identified. These themes related to identity as a young person with Coeliac Disease and to perceptions about food. 2009-12 2009-06 graduation 2865399 eng author unchecked This unpublished thesis/dissertation is copyright of the author and/or third parties. The intellectual property rights of the author or third parties in respect of this work are as defined by The Copyright Designs and Patents Act 1988 or as modified by any successor legislation. Any use made of information contained in this thesis/dissertation must be in accordance with that legislation and must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the permission of the copyright holder. eltheodosi@hotmail.com public 171 University of Birmingham School of Psychology d_cp na 2009-12 graduation