CHARGE syndrome is a medical diagnosis. Can it also be an educational diagnosis?

Deuce, Gail D (2015). CHARGE syndrome is a medical diagnosis. Can it also be an educational diagnosis? University of Birmingham. Ph.D.

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CHARGE syndrome is a common cause of congenital deafblindness, but it has been contended individuals with CHARGE form a distinct group within the broader deafblind population. This thesis explores the education of learners with CHARGE and what the similarities and differences between these two groups might be.

A review of literature identifies reported anomalies that may impact upon learning and development, and establishes very limited research-based evidence is available with regard to educational practice with this group of learners.

Cycle 1 of this investigation involved document analysis of educational reports, revealing internal factors considered to influence learning and development, and external factors including assessment, support from external professionals and teaching strategies. These were explored further in Cycle 2 involving a questionnaire to teachers of a child with CHARGE and interviews of practitioners in an overseas educational establishment.

Commonalities and distinctions between learners with CHARGE and the wider deafblind population were found, and also that established educational deafblind practice is applicable to learners with CHARGE, but that strategies may be alternatively employed and additional strategies also required. A variation in educational provision was also found according to the type of placement attended. In conclusion it was considered that, in a broad sense, educationally there is something unique and distinct in learners with CHARGE.

Type of Work: Thesis (Doctorates > Ph.D.)
Award Type: Doctorates > Ph.D.
College/Faculty: Colleges (2008 onwards) > College of Social Sciences
School or Department: School of Education
Funders: None/not applicable
Subjects: L Education > LB Theory and practice of education
L Education > LC Special aspects of education


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