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CISDA Development Process for decision aids to support self-care decision making

Dhukaram, Anandhi Vivekanandan (2016)
Ph.D. thesis, University of Birmingham.

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Abstract

The self-care management of chronic disease patients is complicated by various everyday decisions that range from routine ill-structured problems, e.g., “What to eat?” to uncertain symptoms-related decisions, e.g., “Why do I feel tired?” Such decisions can have significant consequences on a patient’s health, treatment, care, and associated medical costs. Due to the complexity involved in understanding and analysing everyday decision making, there is a lack of empirical research to guide the development of self-care decision aids. This thesis aims to address this problem by formulating and illustrating the Critical Illness Self-care Decision Aid (CISDA) process through a coherent, structured, integrated design and development process using a case study. Following a literature review, the problems in current approaches and the criteria needed for the development were derived from evidence-based frameworks such as chronic disease management, decision aids standards and complex interventions development process for future designs. Mixed methods were used including: focus groups, interviews, questionnaire, Cognitive Work Analysis and case scenarios for not only constructing an account of self-care needs and decisions but also to evaluate the development process and the decision support provided involving patients, doctors, caregivers, non-medical experts like psychologists and IT/Systems engineers. The CISDA process consists of: (i) needs assessment, (ii) theory formation, (iii) modelling, (iv) integration, (v) interface design and development, and (vi) evaluation for addressing the relevant intersection of human factors, systems engineering, and software engineering. This thesis should prove useful to not only systems engineers but also to a range of practitioners concerned about decision making, maintaining a user's cognitive perspective during specification and analysis of a complex system.

Type of Work:Ph.D. thesis.
Supervisor(s):Baber, Christopher
School/Faculty:Colleges (2008 onwards) > College of Engineering & Physical Sciences
Department:School of Electronic, Electrical and Systems Engineering
Subjects:RA Public aspects of medicine
TK Electrical engineering. Electronics Nuclear engineering
Institution:University of Birmingham
ID Code:6618
This unpublished thesis/dissertation is copyright of the author and/or third parties. The intellectual property rights of the author or third parties in respect of this work are as defined by The Copyright Designs and Patents Act 1988 or as modified by any successor legislation. Any use made of information contained in this thesis/dissertation must be in accordance with that legislation and must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the permission of the copyright holder.
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