Barriers and facilitators to health and social care for BME service users and carers with rare neurodegenerative conditions

Shah, Sonal (2014). Barriers and facilitators to health and social care for BME service users and carers with rare neurodegenerative conditions. University of Birmingham. M.Phil.

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Abstract

Background: Although ethnic inequalities have been widely researched in many areas of health, barriers and facilitators to health and social care services for BME service users and carers with rare neurodegenerative conditions have not been researched.
Aim: To identify the barriers and facilitators to health and social care for BME service users and carers with rare neurodegenerative conditions.
Methods: 15 qualitative semi-structured interviews with service users and carers with motor neurone disease (MND), Huntington’s disease (HD), post-polio syndrome (PPS), multiple system atrophy (MSA), and Charcot Marie Tooth disease (CMT).
Results: Pathways to care are described and barriers and facilitators that service users faced. Barriers included language, expectations of services, knowledge of services. Service users and carers also experienced isolation and stigma. The main facilitator to care was having a care co-ordinator.
Conclusion: Although some of the barriers to care were specific to BME service users and carers, many of the barriers could have been faced by all service users with rare neurodegenerative conditions.

Type of Work:

Thesis (Masters by Research > M.Phil.)

Award Type:

Masters by Research > M.Phil.

Supervisor(s):